I’m too tired to write, especially since I just did a long blog post a couple of days ago. I do want to briefly share that Ethan started Long-Term Maintenance (LTM) today! We went into the clinic for labs early this morning and heard back quickly that his blood count (Absolute Neutrophil Count — ANC) went up considerably since last week and was high enough to start. After dropping Caleb off at day camp, we headed back to the Outpatient Infusion Center at the hospital, where Ethan received LTM day 1 chemo — which included a spinal tap with intrathecal chemo and Vincristine through his port. I had promised him a celebratory trip to Archie’s (local ice cream store) afterwards, but he was too sleepy and achy to go, so we decided to postpone that until the next day. I have various thoughts to share and I want to give some info on what LTM is, but I’m going to hold off on sharing for another post.
Today felt like a big day, having officially crossed the line from frontline treatment to Long-Term Maintenance!